ACT - The Association for Children with Life-Threatening or Terminal Conditions and their Families
"The ACT Charter is intended to raise awareness and understanding among all those who come into contact with children with life-threatening conditions and their families. It sets out the standard of care and support which should be universally available and easily obtained throughout the UK."
The Association of Children's Hospices (UK)
"Association of Children's Hospices brings together over 40 voluntary sector organisations in Great Britain dedicated to the care of terminally ill children. The Association is a Registered Charity (No.1072742) and represents all the voluntary sector children's hospices. The Association also welcomes members from other countries and provides a forum for discussion and exchanges on best practice etc."
Association of Pediatric Oncology Nurses (APON)
"The Association of Pediatric Oncology Nurses (APON) is the leading professional organization for registered nurses caring for children and adolescents with cancer and their families. The highest standards of nursing practice are achieved through education, research, certification, advocacy and affiliation."
Canadian Hospice Palliative Care Association
Canadian Network of Palliative Care for Children
Children's Hospice and Palliative Care Coalition
"Founded in 2001 by Lori Butterworth and Devon Dabbs, Children's Hospice and Palliative Care Coalition is a social movement led by children's hospitals, hospices, home health and grassroots agencies, and individuals to improve care for children with life-threatening conditions and their families."
Children's Hospice International
"C H I Children's Hospice International was founded in 1983 as a non-profit organization to provide a network of support and care for children with life-threatening conditions and their families..."
Children's International Project on Palliative/Hospice Services
"The Children's International Project on Palliative/Hospice
Services is working to concretely enhance the science and practice of pediatric
hospice and palliative care, and to increase the availability of state of the art
services to families. Several leaders in the field of pediatric palliative care
worked collaboratively with the National Hospice and Palliative Care Organization
to develop the Children's International Project on Palliative/Hospice Services.
The project seeks to make the best-known practices in the field of pediatric
palliative care more widely available to care providers."
Embrace Kids Foundation
"The Embrace Kids Foundation (formerly The Institute for Children with Cancer and Blood Disorders) is a non-profit organization located in New Brunswick, NJ. The organization provides funding for a variety of services for our patients and their families while continuing to support research initatives."
European Association for Palliative Care - Paediatric Palliative Care Project
Initiative for Pediatric Palliative Care
"Children with life-threatening conditions face many
hurdles. So do their families. The Initiative for Pediatric Palliative Care
(IPPC - pronounced "ipsee"), represents a consortium of organizations joining
forces to improve the care and the quality of life of these children and their
families."
International Children's Palliative Care Network (ICPCN)
"The ICPCN is the only international network of organisations and individuals working within all children’s palliative care services across the world. We believe that every life-limited child deserves a high standard of total care, wherever they live in the world."
National Alliance for Children with Life-Threatening Conditions (NACWLTC)
"NACWLTC is a coalition of organizations and individual leaders dedicated to improving palliative, end of life and bereavement services for children with life-threatening conditions and the loved ones who care for them. NACWLTC offers a National Resource Center to help every community in America access, develop, implement and evaluate services or children with life-threatening conditions."
October 2001 - A white paper produced by the Children's International
Project on Palliative/Hospice Services (ChIPPS) Administrative/Policy
Workgroup of the National Hospice and Palliative Care Organization
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