Clinical Resource Material

• General
  •   Canadian Virtual Hospice
    
    "The Canadian Virtual Hospice is an interactive network for people dealing with life-threatening illness and loss."
  •   Children's Hospital of The King's Daughters - Terminal Care Resource Site
    
    "Children's Hospital attends to children's needs on many levels, such as developmental, psychological, physical and social, and supports pediatric education and research."
  •  NCI Cancer.gov Childhood Cancers Home Page
  •   Palliative Care for Infants, Children, and Adolescents: A Practical Handbook
    
    Editors: Brian Carter and Marcia Levetown   Publisher: Johns Hopkins University Press   Date: 2004
  •     Palliative.info - General palliative care links and resource material
  •   End-of-Life Care for Children
    
    A joint project of the Texas Children's Hospital, the Texas Children's Cancer Center, and the Texas Cancer Council- "This website, funded by the Texas Cancer Council, was developed to bridge the gap that exists during the transition from aggressive treatment to quality palliative care at the end of life. Developmental considerations are presented to provide a conceptual background for learning how to work with a child who is dying."
• Assessment Tools
  •   Paediatric Pain Profile (PPP)
    
    The Paediatric Pain Profile (PPP) is a behaviour rating scale for assessing pain in children with severe physical and learning impairments.
• Decision Making
  •   From the Canadian Paediatric Society (CPS) -
    • Treatment decisions regarding infants, children and adolescents
    • Making treatment decisions for babies, children and teens
  •   Ian Anderson Continuing Education Program in End-of Life Care - See Module 12: End-of-Life Decision-Making in Pediatric Palliative Care
    
  •   Nuffield Council on Bioethics - Critical care decisions in fetal and neonatal medicine: ethical issues
  •    Guide to Decision Making in Palliative Care
• Pain
  •  Centre for Pediatric Pain Research
    
    "The Centre for Pediatric Pain Research is an international leader in children's pain research. The interdisciplinary research conducted by our faculty, students, and staff tackles many facets of children's acute and chronic pain. We are committed to conducting high-quality research on how to better understand, assess, and manage children's pain and translating this research into improved practice."
  •   Children's Pain Assessment Project - Clinical Guidelines
    
    Protocols and guidelines for pain management in children
  •   Making Cancer Less Painful - A Handbook for Parents
    
    By Patrick J. McGrath, Ph.D.; G. Allen Finley, M.D., FRCPC; Catherine J. Turner RN MN. "This book was written as part of a comprehensive pain management plan at the Oncology Unit of the Izaak Walton Killam Children's Hospital. We believe that parents should take an active role in the management of their child's cancer pain, but are often not given the information they need to participate."
  •   Pain, Pain Go Away: Helping Children With Pain
    
    By Patrick J. McGrath, Ph.D.; G. Allen Finley, M.D., FRCPC; Judith Ritchie, R.N., Ph.D.. "This booklet was written to teach parents about pain in children and to help them to ask for better care."
  •  Cancer Pain Management in Children - Texas Children's Cancer Center
    
    "The design and development of this website and its contents were funded by a grant from the Texas Cancer Council as a resource, focused on pain management, for health professionals who care for children with cancer."
  • World Health Organization
    • WHO Cancer Pain Release Volume 16, Nos. 3 and 4 - 2003: Pain control in pediatric palliative care
    • Pain in Children with Cancer - WHO + IASP Collaboration
    • Resources For Pain Control And Palliative Care In Children
    • WHO 1998 Document: Cancer Pain Relief and Palliative Care in Children
      Here is a link to the document in pdf form
• Psychosocial
  •   Association of Pediatric Oncology Social Workers
    
    "The mission of APOSW is to advance practice, extend knowledge and influence pediatric oncology policies and programs in order to enhance the emotional and physical well being of children with cancer and their families."
  •   BC Children's Hospital Grief and Loss Resources
  •   Guidelines for health care professionals supporting families experiencing a perinatal loss
  •   KIDSAID
    
    "KIDSAID is a safe place for kids to share and to help each other deal with grief about any of their losses. It's a place to share and deal with feelings, to show artwork and stories, to talk about pets, to meet with one's peers.
    KIDSAID is owned and run by GriefNet. It was created and designed by Elyzabeth Lynn. "

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